Introducing the Survivorship Council

We welcome colorectal cancer patients, survivors, and caregivers to lend the patient experience and voice to the Coalition’s work. 

We are so excited to welcome 17 voices to the Colon Cancer Coalition through the formation of a Survivorship Council. This group will represent the colorectal cancer patient, survivor, and caregiver perspective and will provide insight into the patient experience as we work towards our overall goals of education and screening for colorectal cancer and supporting patients along their journey.

Led by Allison Rosen, a rectal cancer survivor, Colon Cancer Coalition board member, and local event director for Get Your Rear in Gear® – Houston, this group was created to further infuse the patient, survivor, and caregiver voice into the work being done by our staff and volunteers. The Council includes 13 patients or survivors and 4 caregivers, all at various stages on their journey with colorectal cancer.

The creation and launch of the Survivorship Council has been supported with funding from Guardant Health.

“From the moment you hear the words ‘You Have Cancer’ you are a survivor. For in that moment, and in all the ups and downs to come, your cancer does not define you,” remarks Chris Evans, president of the Colon Cancer Coalition. “We are proud to strengthen the patient’s voice and perspective on our work to increase screening for colorectal cancer and improve the patient experience. We are grateful for their time, efforts, and leadership and look forward to their insights.”

“Survivorship means so much to me,” says Allison Rosen. “I am blown away by the strength and perseverance by each individual and appreciate the conversations and their desire to use their shared experiences for the betterment of others. As a group, we are grateful to the Coalition for lifting up the voice of those living with colorectal cancer.”

“Guardant Health is honored to support the Colon Cancer Coalition in their work to support patients along their journey through the creation of the Survivorship Council,” says Julie Hamburg, Director of Patient Advocacy at Guardant Health. “Patients are at the heart of our mission, and having the opportunity for them to connect and find support in one another through this Council is a wonderful and welcomed opportunity.”

A full list of the patients, survivors, and caregivers who are volunteering their time for the Survivorship Council can be found here.