Resources and support for patients, survivors, and caregivers

We realize the importance of resources and the impact they can have in a cancer patient’s life.

Inclusion on this list does not constitute an endorsement by the Colon Cancer Coalition. We do not claim responsibility for any of these resources. Please contact each directly with any questions.

This page is dedicated to the memory of Sarah DeBord, colorectal cancer patient and advocate who was lost to this disease in July 2020. Sarah was a tireless advocate and educator, using her experiences as a patient to help others.

For eight years she inspired others as she truly LIVED with metastatic disease; experiencing new things, finding new passions, and giving her all. We are honored that for five years Sarah chose to channel her passions into her work at the Colon Cancer Coalition. She never wavered in her vision to encourage screening, help young people learn the signs and symptoms, and teach patients to advocate for themselves so they may have a different outcome than she did.

Peer-to-Peer and Online Support

COLONTOWN

www.colontown.org

COLONTOWN is an online community of more than 100 “secret” groups on Facebook for colorectal patients, survivors, and caregivers. There are separate neighborhoods focused on patients with different stages of disease, the differing types of treatment, and special interests – such as CRC clinical trials, young-onset CRC patients, and local support groups.

 

Imerman Angels

www.imermanangels.org

866-IMERMAN (463-7626)

Imerman Angels provides FREE personalized one-on-one cancer support for cancer fighters, survivors and caregivers.

 

AICAF’s Sacred Circle

www.imermanangels.org

A community space for Indigenous cancer survivors, patients, and caregivers where you can build your own personalized support network. The free platform allows you to communicate and organize with those who understand your unique needs.

 

Patient and Caregiver Financial Support

Patient Advocate Foundation

Financial Aid Fund Division

https://aicafsacredcircle.com/

(855) 824-7941

This independent division of Patient Advocate Foundation provides small grants to patients who meet financial and medical criteria. Grants are provided on first-come first served basis and are distributed until funds are depleted. Qualifications and processes for each fund may differ based on fund requirements. Patients who are interested in applying for financial assistance should start by calling this division toll free at (855) 824-7941 or by registering your account and submitting an application online.

 

CancerCare®

Financial Support, Counseling, Support Group

https://www.cancercare.org/diagnosis/colorectal_cancer

Hopeline: (800) 813-HOPE (4673)

Founded in 1944, CancerCare® is the leading national organization providing free, professional support services and information to help people manage the emotional, practical and financial challenges of cancer. The comprehensive services include case management, counseling and support groups over the phone, online and in-person, educational workshops, publications, and financial and co-payment assistance. All CancerCare services are provided by master’s-prepared oncology social workers and world-leading cancer experts.

 

Family Reach

https://familyreach.org/ftp

973-394-1411 or 857-233-2764

Family Reach is a national organization dedicated to eradicating the financial barriers that accompany a cancer diagnosis. They work with patients and healthcare professionals at more than 400 top-tier hospitals and cancer centers, striving to reach more families before they hit critical financial breaking points. Through our solutions-oriented Financial Treatment Program, nationwide events, strategic partnerships, and generous community support, we disrupt how cancer financially affects families.

 

HealthWell Foundation

https://www.healthwellfoundation.org/patients/

(800) 675-8416

When health insurance is not enough, HealthWell Foundation may help — with copays, premiums, deductibles and out-of-pocket expenses for supplies, supplements, surgeries and more.

 

Ancora Cancer Foundation

http://ancoracancer.org

(800) 826-1050

Ancora Cancer Foundation is dedicated to the aid and support of cancer patients, their families and caregivers.  Their mission is to provide education about the devastating financial impact of cancer on patients and families. They act to soften the financial implications of cancer by publishing helpful information offering solutions and by providing direct financial assistance through co-pay grants for chemotherapy and targeted-therapy drugs, as well as cancer patient family crisis stipends for travel and lodging relating to treatment stays.

 

American Life Fund

The American Life Fund Cancer Grant

https://www.americanlifefund.com/american-life-fund-cancer-grant/

Every month, American Life Fund awards a patient in active treatment a grant for $250 to use toward living and or treatment costs.

 

Good Days

https://mygooddays.org

(877) 968-7233

Good Days supports those with life-altering conditions, from chronic to terminal, in part by helping patients pay for costly treatments insurance won’t cover in their entirety. But we do more than simply provide financial support. We guide patients through an opaque and ever-changing healthcare landscape, always listening, always responding, always caring.

 

PAN Foundation

https://panfoundation.org/

(866) 316-7263

High deductibles and copays shouldn’t keep people with life-threatening, chronic and rare diseases from getting the treatment they need. PAN uses the donations of caring individuals and corporations to offer the fastest, most dependable way for patients to pay their out-of-pocket costs. Because when the unexpected happens, all you should have to focus on is getting better.

 

Young Adult Financial Support

The Samfund 

http://www.thesamfund.org

The Samfund provides support to young adults who are struggling financially because of cancer. Through direct financial assistance and free online support and education, they help young adults survive and move forward with their lives after cancer.

 

HOPE for Young Adults with Cancer

http://www.hope4yawc.org

HOPE for Young Adults with Cancer provides direct financial support to young adults 18-40 facing cancer.

 

Education Financial Support

The Ulman Cancer Fund for Young Adults

http://www.ulmanfund.org

The Ulman Cancer Fund for Young Adults is committed to helping young adults (ages 15-39) continue their education after being affected by cancer through their own diagnosis or the diagnosis of a loved one.

 

Patient Advocate Foundation

http://www.patientadvocate.org/help.php?p=69

Academic scholarships for survivors. The purpose of the scholarship program is to provide support to individuals that are legal residents of the United States of America, under the age of 25, who have been diagnosed with or treated for cancer, a chronic, or life threatening debilitating disease within the past five years.

 

College Consultants Care

https://collegeconsultantscare.org/

Provides free college admissions assistance for high school students recently diagnosed with cancer or who have a parent with cancer. Independent educational consultants objectively guide students and help them meet application deadlines, plan for college visits, create a standardized testing plan, develop college application strategies, consider possible majors and search for financial aid/scholarships.

 

Family/Children Financial Support

The Colon Club

The Kimberly Fund

www.colonclub.com

The Kimberly Fund gives children, whose parent or primary caregiver is currently being treated for colorectal cancer or who has lost a parent or primary caregiver to colorectal cancer, a chance to put the cancer aside, even just for a moment, and be a kid again!

 

Travel and Hotel Financial Support

Road to Recovery

https://www.cancer.org/treatment/support-programs-and-services/road-to-recovery.html

The American Cancer Society Road To Recovery program provides transportation to and from treatment for people with cancer who do not have a ride or are unable to drive themselves.

 

Joe’s House

https://www.joeshouse.org

Nonprofit organization that helps cancer patients and their families find a place to stay when traveling away from home for medical treatment.

 

AirBnB and Open Homes

www.airbnb/medical

AirBnB and Open Homes matches patients traveling for medical care with hosts willing to provide free accommodations for them to stay.

 

Air Charity Network

http://aircharitynetwork.org

Air Charity Network is comprised of network member organizations who cover specific geographical service areas and coordinate volunteer pilot flights who provide free air transportation for children and adults with medical needs, including far-away doctor appointments, special surgeries, or frequent chemotherapy/radiation.

 

Patient Travel Referral Program

http://www.patienttravel.org

The Patient Travel Referral program, a program of Mercy Medical Angels, provides information about all forms of charitable, long-distance medically-related transportation and provides referrals to all appropriate sources of help available in the national charitable medical transportation network.

 

Corporate Angel Network

http://www.corpangelnetwork.org/home

Corporate Angel Network is the only charitable organization whose sole mission is to transport cancer patients to the hospital at which they need to be in order to receive a specialized form of treatment. Simply put, they pair empty seats – on both private and corporate planes – with qualified patients who need rides at no cost. This not only improves the patient’s chances of survival but at the same time, it reduces their emotional stress, physical discomfort, and financial burden.

 

Hope Lodge – American Cancer Society

https://www.cancer.org/treatment/support-programs-and-services/patient-lodging/hope-lodge.html

(800) 227-2345

Hope Lodge offers cancer patients and their caregivers a free place to stay when their best hope for effective treatment may be in another city. Not having to worry about where to stay or how to pay for lodging allows guests to focus on getting better. Hope Lodge provides a nurturing, home-like environment where guests can retreat to private rooms or connect with others. Every Hope Lodge also offers a variety of resources and information about cancer and how best to fight the disease. Currently, there are more than 30 Hope Lodge locations throughout the United States and Puerto Rico. Accommodations and eligibility requirements may vary by location.

 

Hotel Keys of Hope – American Cancer Society

https://www.cancer.org/our-partners/extended-stay-america.html

(800) 227-2345

Getting the best care sometimes means cancer patients must travel away from home.  This can place an emotional and financial burden on patients and caregivers during an already challenging time.  Extended Stay America, a leading extended stay hotel chain, has committed to making this difficult situation easier for cancer patients and their families.

Ostomy Supply Support

United Ostomy Associations of America (UOAA)

https://www.ostomy.org/emergency-supplies/

 

Ostomy 2-1-1

http://ostomysupplies.ostomy211.org

 

ConveTec Assistance Program

https://www.convatec.com/ostomy/

(800) 422-8811

 

Hollister Assistance Program

http://www.hollister.com/en/default.aspx?sc_lang=en

(800) 323-4060

 

Coloplast Patient Assistance

https://www.coloplast.us

(877) 781-2656

 

Kindred Box

https://kindredbox.org/pages/how-to-request-ostomy-supplies

Fertility and Adoption Support

Alliance for Fertility Preservation

https://www.allianceforfertilitypreservation.org/costs/financial-assistance

(952) 290-8950

The high cost of reproductive services can be a barrier for cancer patients who need to undergo fertility preservation treatments quickly, before they begin their cancer treatments. These programs may help patients offset some of those costs.

 

Additional Financial Support

American Life Fund

https://www.americanlifefund.com/

If you have been recently diagnosed with late-stage cancer and need money now the American Life Fund can provide financial help for cancer patients by assisting them in selling their life insurance policy. The mission is to help cancer patients seek the resources they need and the cancer financial assistance they deserve. Through this hassle-free process, American Life Fund will help patients get an immediate cash offer for a life settlement policy.

 

Lazarex Cancer Foundation

https://lazarex.org/helping-you/looking-for-help

If you are a cancer patient who needs help navigating your clinical trial options or financial assistance to attend a clinical trial, they’d like to hear from you. Patient navigators can help you find the right clinical trial. They can also help with the costs associated with participating in a clinical trial, including: transportation (airfare, gas, rental cars, taxi fare, parking/tolls), lodging (short- and long-term housing), certain medical expenses not covered by insurance and necessary for clinical trial treatment.

 

LIVESTRONG

https://www.livestrong.org/we-can-help

 

Colonoscopy Assistance

Colonoscopy Assist

https://colonoscopyassist.com/

(855) 54-COLON / (855) 542-6566

The ColonoscopyAssist program was founded in 2010 as a way to remove financial barriers to colorectal cancer screening for the uninsured.

 

Treatment Support

Pfizer Oncology Together

https://www.pfizeroncologytogether.com/

Financial support for patients prescribed Pfizer medications to help cover drug costs as well as additional emotional, practical, and educational support.

Lynch Awareness

J-NOTT-GTT

https://www.jnottgtt.org/

Supporting awareness for Lynch Syndrome in loving memory of Jeremy Nottingham. Proudly supported by the Colon Cancer Coalition.

 

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Additional resources may exist in your local community. The Colon Cancer Coalition encourages you to talk to your oncology team or hospital social worker about local resources and services that may be available for individuals or families facing cancer. There are many community nonprofits that work to support those in need, and can provide individualized support.

 

Please note that inclusion on this list does not constitute an endorsement by the Colon Cancer Coalition. We do not claim responsibility for any of these resources. Please contact each directly with any questions.