I was diagnosed when a tumor in my ascending colon, near my appendix, ruptured one night. I thought it was my appendix and my friend Jenn drove me to the hospital. She left around midnight thinking I would be having a laparoscopic appendectomy. That’s what I thought too. Imagine how I felt when I woke up at 4AM with a huge bandage covering my entire belly. The surgeon said there was a “mass” and he had performed a hemi-colectomy.
There was a bad snow storm that week and the pathology lab was short staffed and behind. It took four days to find out that the mass was adenocarcinoma. I healed and started chemo the following month.
I had very few symptoms, other than I felt bloated after meals. I didn’t think it could be serious because I felt fine and 30-somethings don’t get colon cancer, or at least that’s what I thought.
The treatment wasn’t as bad as I anticipated. After the tumor and half of my colon was removed I had 6 months of FOLFOX4 followed by another 6 months of 5FU/LV alone.
I kept working during the treatment and rarely felt that sick. I am a scientist doing basic research. Science is my life and I am happy that I could continue working. My toenails turned black, I lost feeling in my hands and feet and my memory wasn’t very good for about a year afterwards. Nobody warned me about “chemo brain”. Maybe the fog is actually a blessing. I’m not sure I want a clear memory of that year. Fortunately, I slept through most of it!
People cope in different ways, but I think denial went a long way for me. I never believed that I wasn’t going to make it. My friends were also a huge help. They kept me active, even taking me out while I was getting infused. They kept my life as normal as possible and allowed me to forget for a while.
My friends had to occasionally give me rides to appointments or visit me in the hospital. They helped with chores while I was recovering from surgery. Mostly they provided emotional support and did their best to keep my life as normal as possible over the year I was getting treatment. I am thankful that I have so many great friends in my life but I know this was difficult for them too.
My family knows that they are also at risk. I’m not sure they all fully understand but I tried to explain as best I could. Some of them didn’t want to know if my cancer was the “genetic” form. I don’t really understand this since regular screening could save their lives.
The effect on me is a little more insidious. I begin to forget but that is short-lived when my CEA goes up or I have to wait for the results of a scan. There’s always a grey cloud somewhere over my shoulder. It casts a shadow every time I need to have a scan or get screened for some other cancer.
It took me a year to get back into running shape but I was doing long walks throughout the treatment. Exercise probably isn’t what people think of when they are being treated for cancer but I think it helped me, if only mentally.
I am now five years from diagnosis and I feel great. Four years ago every step was painful, now I barely notice except for the days that I do really long runs. What sane person needs to run 15 miles anyway? Marathons are probably not in my future but I can accept that limitation. I am training for a 10 mile race in a few weeks and will be running the 5K for the colon cancer coalition this month. I’m awaiting scan results as I prepare for the races so that little dark cloud is still in the sky.
I take an aspirin a day and calcium/vitamin D. Aspirin, calcium and vitamin D are also supposed to protect against colon cancer. I also need to build my bones since I lost some bone mass from the chemo. My feet hurt from neuropathy and my abdomen hurts from 2 surgeries but it doesn’t slow me down much. I run 40 miles a week and try to ignore the pain. Ibuprofen is a perfectly acceptable breakfast food!
My diet has changed a little. I have always eaten a lot of vegetables, but wonder if that was such a good thing when you consider the pesticides on our food. I try to stick with organic food these days for that reason and grow my own vegetables in the summer.
Today, I am reminded of how lucky I am as I type this. I made and lost a friend while getting treatment and I think of him often. Seeing him fight and eventually lose the battle will stay with me for the rest of my life
I have a dear friend whose physician found a tumor in her colon, near appendix. She will have 1/2 of her colon removed in less than a week.
Can the tumor be biopsied only after it is removed? I would think the doctors would have some idea now, prior to the surgery.
I too am a cancer survivor – love to you, Meg
Ive just had my colon removed after finding mass also tumour on bowel worried sick fr results been a week since my op still in hospital
I enjoyed reading your story and am impressed by where you are now! Wishing you good health, well done. x
I’m much older than you & just had surgery to remove a rare appendiceal muscecole,which turned out to be a mucinous cystadenoma. Since the tumor was on the distal end of my appendix, it hadn’t leaked or ruptured, & the surgeon was able to remove my appendix laproscopically using an enobag, I was fairly confident I really didn’t have anything to worry about. When my surgeon referred me to an oncologist, I just figured he was covering his proverbial rear end. (I haven’t seen either my surgeon or the oncologist yet.) Being the curious person I am (might have something to do with being a librarian), I started doing research on the relationship between appendiceal tumors & colon cancer. Now, I am not so confident. There seems to be a connection. Now I am scared & my reaction is probably premature because I haven’t spoken to my surgeon or the oncologist. Your story is inspirational; so, I will be keeping it in mind while I continue doing research & wait for my follow-up appointments. Thank you for putting your story on the Internet.
I found this article very interesting, thanks for sharing
How many vegetables were you eating?
Did you put salad dressing on them?
Did you stir fry them?
Did the salad dressing or cooking oils contain seed oils like soybean, corn, canola, and other high omega-6 oils?
Did you use olive oil for cooking?