1. The Organization Collecting the Information

The Colon Cancer Coalition is the sole owner of the information collected on this site. We will not sell, share, rent, or otherwise disclose this information to other parties other than as disclosed in this statement.

This website contains links to other sites. The Colon Cancer Coalition is not responsible for the privacy practices of other sites. This privacy statement applies solely to information collected by this website.

We encourage our users to take appropriate precautions when leaving our site and to read the privacy statements of each and every web site that collects personally identifiable information.

2. Personal Identifiable Information Use

The Colon Cancer Coalition collects information from our users at various areas throughout our website and from other sources. This section describes these points of collection.

Offline Collection Points

We may also collect information from people through other means such as on the telephone, by e-mail, by fax, on paper, and in person. This privacy policy governs the use and disclosure of that information as well. Users may choose to “opt out.”


In order to donate to the Colon Cancer Coalition events, users must first complete a donation form powered by Convio.com. During this process, users are required to give contact information such as name, address, phone number, and e-mail address. This information is used to allow us to contact the users for acknowledgement of the donation for tax purposes or to send a special note of thanks for generosity. Credit Card information is not obtainable by the Colon Cancer Coalition.  All information provided to Convio is transmitted using SSL (Secure Socket Layer) encryption.

Event Registration

In order to register for an event on our website, an entrant is required to give contact information such as name, address, phone number, and e-mail address, as well as information about his/her event(s)–which may include age, sex, qualifying mark(s), etc. This information is required for participation in events about entrants (such as name, age, address, event entered, qualifying mark, etc.). This allows the Colon Cancer Coalition to properly and accurately prepare entry lists and conduct the event plus meet USATF and insurance guidelines. Since online registrations allow participants to pre-register for events, the same rules apply to the credit card information noted under the donation section in terms of privacy. Top finishers and fundraisers are often acknowledged with awards so contact information is critical. The Colon Cancer Coalition is a 501(c)3 organization and for tax purposes, we must also retain a record of registrations.


If a user subscribes to our newsletter(s), we ask for contact information such as name and e-mail address. These e-mail addresses and names are never shared outside our organization, except as described in this privacy statement.

Contests and Surveys

From time to time, we may conduct contests or surveys. Participation in these contests or surveys is completely voluntary, and thus the user has a choice about whether or not to disclose the information requested. Information from these contests and surveys may be combined with other information we have about you, but is never shared except in the form of aggregate statistics.

Log Files

We use standard server log files to analyze trends, administer the site, and gather broad demographic information for aggregate use. This log file information is not linked to personally identifiable information, and all information gleaned from log files is used only in the aggregate.


A cookie is a piece of data stored on the user’s hard drive containing information about the user. When someone logs into the members-only area, for example, we set a per-session cookie that identifies this person as a legitimate member. This cookie allows us to keep track of who the user is while he/she is browsing the members-only pages so he/she won’t have to log back in each time he/she visits a new page. Per-session cookies expire after the user leaves our website (i.e. once the user  closes his/her web browser, the cookie is deleted from his/her system).

If a user rejects the cookie, he/she may still use most parts of our site. The only drawback is that the user will have limited access in some areas of our site.

3. Disclosures

We occasionally share information with health organizations, media and USATF entities and third parties. This section describes what information we share and with whom.

Colon Cancer Coalition Entities

The Colon Cancer Coalition may receive general inquiries about aggregated demographic information which we may share with corporate, health or media organizations. When participants achieve a top ranking in a age category, the USATF or State Running Associations may request name, address, phone, e-mail address, etc. This information is used to contact members about general-interest matters and specialized topics in the same manner as described in Section 2 above. All associations are required to abide by the Colon Cancer Coalition privacy policy.

We use an outside shipping company to ship orders, an outside printing company to print certain publications, and a credit card processing company to bill users for goods and services. These companies are directed not to retain, share, store, or use personally identifiable information for any secondary purpose.

We will also share information to prevent fraud, to respond to a legal process, or as otherwise required by law.

Other kinds of disclosures of personal information

Colon Cancer Coalition officers, employees, association officers and committee members may have their name, address, fax number, phone number, and e-mail (work and/or home for each) listed both on the website and in print for contact purposes.

Survivors or families and friends may submit biographies and stories which posted on the Colon Cancer Coalition website. These people agree to have certain information about themselves communicated to the public, including, but not limited to, name, home city and state, age, educational background, etc.

4. Security Procedures

This website takes every reasonable precaution to protect users’ information. When users submit sensitive information via the website, the information is protected both on- and off-line. We use SSL encryption to protect sensitive information online, we also make every reasonable effort to protect users’ information off-line. Access to users’ information, not only the sensitive information mentioned above, is restricted in our organization. If you have any questions about the security at our website, you can send an e-mail to info@colocancercoalition.org.

5. Choices

Choice and opting in/out

Donation and registration acknowledgements and emails allow members to receive only communications they have expressed interest. However, members will occasionally receive important communications from us regardless of their mailing preferences (for example to confirm a membership renewal, to confirm an event entry, or to request required membership information that is missing).

Non-members may opt in or out of various mailings by following the instructions provided at the bottom of e-mail messages or as described on our website.

SMS Opt-In Privacy Policy

1. Subscription

By opting in to receive SMS messages from Colon Cancer Coalition, you agree to the terms of this SMS Opt-In Privacy Policy. Message and data rates may apply.

2. Information Collected

2.1. Phone Number:We collect your mobile phone number when you opt-in to receive SMS messages.

2.2. Opt-In Information:

We may also collect information about the opt-in process, including the date and time of subscription.

3. Message Frequency

You will receive SMS messages from Colon Cancer Coalition, and message frequency may vary. Message content may include updates, event information, and other relevant communications.

4. Opting Out

4.1. Text STOP:To stop receiving SMS messages, reply with the word “STOP” to any message you receive.

4.2. Opt-Out Confirmation:

Upon opting out, you will receive a confirmation message.

5. Privacy and Security

5.1. Confidentiality:We respect your privacy and will not share your phone number or personal information with third parties.5.2. Security Measures:We implement reasonable security measures to protect your phone number and related information.

6. Consent

By providing your mobile phone number and opting in to receive SMS messages, you consent to receive communications from Colon Cancer Coalition.

7. Data Usage

We use your mobile phone number solely to send you SMS messages related to Colon Cancer Coalition activities and initiatives.

8. Changes to the SMS Opt-In Privacy Policy

We reserve the right to modify this SMS Opt-In Privacy Policy anytime. Changes will be effective upon posting the updated policy on our website.

9. Contact Information

If you have questions about this SMS Opt-In Privacy Policy, please contact Colon Cancer Coalition at info@coloncancercoalition.org.

Users of our site are always notified when their information is being collected by any outside parties. We do this so our users can make an informed choice as to whether they should proceed with services that require an outside party.