My story began 41 years ago, when I was 7 years old. I was diagnosed with bladder cancer. I had my bladder removed and a man made bladder, made out of my large intestine. I’ve had several operations growing up and been to hell and back. I also had chemo and radiation.
My kidney disease started when I was a child and has been deteriorating since then. I was lucky enough to have the best family and the doctors at Duke to support me throughout my life.
Fast forward to September 2016 when I was diagnosed with stage III colon cancer. I went through a month of chemo and radiation because they didn’t want to over do it on my body. I handled all of it very well this time.
It has been a month and half of waiting, and I’m really tired of it. I was also diagnosed with stage V kidney disease at the end of my colon cancer treatment. I have lived the majority of my life with less than one working kidney. Not only do I have to watch what I eat for colon cancer but I also have a very strict diet for my kidney disease, low sodium, low phosphates, low potassium. It seems like everything I want and love is mostly off the list and that has been the biggest struggle.
I knew this day would come since I was a child, but it still comes as a shock that I struggle with. I know colon cancer is more treatable and beatable than ever but kidney failure I wasn’t so sure about. I know dialysis has improved over the years but since I have cancer right now, I’m not even eligible for a kidney donor for at least two years after being cancer free.
I still have my great family with me, so I know I am not alone. I know they can’t understand what I’m going through completely, but I will do everything in my power to keep fighting everyday for them and myself.
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Thank you for sharing your remarkable story Brent. As part of your extended family we want you to know that we support you all the way.
God and his angels are with you every day, Brent, as are your friends, near and far. Hugs and prayers always.